Programs & Campaigns

BEYOND BARRIERS

Rare Disease & Disability Awareness Club

Founding Chapter

Supported by SODRE Foundation through educational resources and advocacy guidance.

Friends Academy (Locust Valley, New York)

Looking beyond labels.

Beyond Barriers is a youth-led initiative that helps students learn about rare diseases and disabilities, challenge stereotypes, build connections across abilities, and turn awareness into action.

Founded by Hudson Lee

“Growing up with my cousin Sophia taught me that having a disability is only one part of who someone is. Beyond Barriers is about looking past assumptions, finding what we have in common, and really getting to know the person.”

EDUCATE · CONNECT · SERVE · SUPPORT · ADVOCATE

#WearAndShareDDX3X

In honor of International DDX3X Day, SODRE Foundation launched the #WearAndShareDDX3X campaign with a simple goal: wear a shirt, share a story, and start a conversation. Supporters helped bring DDX3X awareness beyond our immediate community by sharing photos, stories, and information with their own friends and followers.

The campaign sold 120+ shirts and hoodies and raised $1,600, with proceeds donated to the DDX3X Foundation to support research and resources for families. More importantly, every share helped introduce new people to DDX3X Syndrome and made the rare disease community a little more visible.

120+ pieces sold • $1,600 donated • Countless conversations started

SHOP

TOPGOLF FORE GENES

We are excited to share the success of our Topgolf Fore Genes event held on April 19 at Topgolf El Segundo. We had an incredible turnout with 10 bays and 60 players coming together to support our cause for the DDX3X Foundation. This event was especially meaningful as we also celebrated Sophia’s 20th birthday, making the evening a memorable combination of community, purpose, and celebration. Thanks to the generosity of our sponsors, donors, and participants, we are proud to share that we raised $10,000 through raffles, donations, and sponsorships to support the DDX3X Foundation. A special thank you to Jenny Yoo Collection for generously providing food, drinks, and a bay for youth participants. This event would not have been possible without the incredible support from our community. Together, we continue to raise awareness and drive impact for the DDX3X community.

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GREENS FORE GENES

We are excited to share the success of our very first Greens Fore Genes charity golf event on July 24th at Los Verdes Golf Course in Rancho Palos Verdes! We had a fantastic turnout with 8 teams (32 players) coming together to support our cause for the DDX3X Foundation.

Tournament Results

1st Place: Team DDX3X with a round of 56
2nd Place: Team Sigma Snacks with a round of 58

3rd Place (Tie): Team Lamill and Team Big Putts with a round of 61

Thanks to the generosity of our sponsors, donors, participants, and volunteers, we are proud to announce that we donated $7,000 in proceeds directly to the DDX3X Foundation.

This event would not have been possible without the incredible support from our community. Thank you for making our first tournament unforgettable! Together, we are driving awareness and hope for the DDX3X community.

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Sodre Foundation