Advocating for Rare Diseases and Communities Like DDX3X
About Us
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Our team
We are the proud family of Sophia and are committed to raising awareness, educating, and advocating for individuals and their families who have been affected by a rare disease.
Our history
SODRE Foundation was founded by a junior golfer named Audrey Chang. Audrey's journey began with a personal story of love and determination. Witnessing her older sister, Sophia's struggles with DDX3X syndrome, a rare genetic disorder, Audrey decided to take action knowing that treatment and therapy options could improve the quality of her sister’s life. She combined her love and passion for golf with her commitment to make a difference, leading to the establishment of SODRE Foundation in 2023.
Our mission
S-upporting
O-pportunities
D-reams
R-are disease community
E-ducation + advocacy
Our mission at SODRE Foundation is Supporting Opportunities and fulfilling Dreams for the Rare disease community through Education and advocacy.
Sophia + Audrey = SODRE