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Welcome to SODRE Foundation
Welcome to SODRE Foundation Welcome to SODRE Foundation Welcome to SODRE Foundation
Welcome to SODRE Foundation
About Us
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Our team
We are the proud family of Sophia and are committed to raising awareness, educating, and advocating for individuals and their families who have been affected by a rare disease.
Our history
SODRE Foundation was founded by a junior golfer named Audrey Chang. Audrey's journey began with a personal story of love and determination. Witnessing her older sister, Sophia's struggles with DDX3X syndrome, a rare genetic disorder, Audrey decided to take action knowing that treatment and therapy options could improve the quality of her sister’s life. She combined her love and passion for golf and film, with her commitment to make a difference, leading to the establishment of SODRE Foundation in 2023.
Since founding SODRE, Audrey has continued expanding her involvement within the rare disease community through advocacy, storytelling, and awareness initiatives. She has participated in programs and events connected to organizations such as the EveryLife Foundation for Rare Diseases and YARR (Young Adult Representatives of RDLA), where she has connected with advocates, families, and leaders working to create greater visibility and support for individuals affected by rare diseases.
Our mission
S-upporting
O-pportunities
D-reams
R-are disease community
E-ducation + advocacy
Our mission at SODRE Foundation is Supporting Opportunities and fulfilling Dreams for the Rare disease community through Education and advocacy.
Sophia + Audrey = SODRE